LyleG
gear head
- Aug 10, 2006
- 6,388
- 28
- Country
- Canada
Our son has been covered in bruises on and off since birth. Over the last month it got to the point where we were finally able to get a doctor to take action. There response was to call child protection services and they almost instantly assumed it was an abuse case. For the last month we had to deal with this crap, all the while knowing how ludicrous it was.
Today the whole situation changed. We spent the entire day at the hospital after seeing a new doctor this morning. This new doctor was horrified at what has happened up to this point and could not believe the path we had been put down. So after a battery of tests they diagnosed my 9 month son with type A Hemophilia.
To say I am devastated is an understatement. I have spent the last 2 hours reading about it and am finally starting to get a grip on the reality of it. So far I am at least a little relieved in reading that the current treatments work well and most people are able to live normal lives (within reason). None the less I just needed to vent, and get this off my chest. Between the anger I feel, the bouts of dread and crying, and a level of confusion I cant explain, I dont know what to even do. I dont know how much I will be around for the foreseeable future, but I will try to stop in from time to time.
Thanks for listening
Lyle
Today the whole situation changed. We spent the entire day at the hospital after seeing a new doctor this morning. This new doctor was horrified at what has happened up to this point and could not believe the path we had been put down. So after a battery of tests they diagnosed my 9 month son with type A Hemophilia.
To say I am devastated is an understatement. I have spent the last 2 hours reading about it and am finally starting to get a grip on the reality of it. So far I am at least a little relieved in reading that the current treatments work well and most people are able to live normal lives (within reason). None the less I just needed to vent, and get this off my chest. Between the anger I feel, the bouts of dread and crying, and a level of confusion I cant explain, I dont know what to even do. I dont know how much I will be around for the foreseeable future, but I will try to stop in from time to time.
Thanks for listening
Lyle